Special Needs parenting comes with more obligations and responsibilities than raising typical children. One of those is not only the different strategies that make parenting our children easier, but how to help others who need it. Advocacy and public service take on a whole new meaning when you are a parent to a child with disabilities. We fight, we lobby, we vote and we advocate…constantly.
The “parent power team” traveled to Topeka, September 23, to ask our state for better supports for families who perform long-term caregiving.
Spending my Birthday at the State Capitol, Advocating for Those With Disabilities Read More »
If you’re curious about what a Medicaid waiver is or how we get the in-home support (and extra therapies) we do for Hudsyn, this post is for you.
What is a Medicaid Waiver and Why Do We Need It? Read More »
Last week, I wrote a post about our son’s recent diagnoses of moderate ADHD and mild (Level 1) autism. I also talked about how we hadn’t told him of his new “labels.” It still stings a bit to discuss this, even though I know he’ll be a GREAT human. It’s always challenging to hear a
Telling Damek He Has Autism Read More »
It’s not like we weren’t aware of Damek’s challenges early in his life. The speech delays at three years old, the hyperactivity and constant need to move and interrupt conversations, the inability to maintain a meaningful conversation in first grade were all chalked up to “he’s just a little boy with a lot of energy…it
What Happens When Your Second Child is Diagnosed Read More »
Join us for Hudsyn’s Dream Big Day 2021!
Hudsyn is a 2021 Dream Big Day Ambassador for Children’s Mercy Hospital Read More »
If you’re like us, we have often struggled to purchase big-ticket items on our middle-income salary. Here are some quick and easy ways to help lower the costs of raising a child with special needs.
33 Simple, Low-Cost Fundraising Ideas for Families with a Special Needs Child Read More »
We’ve heard it many times: “2020…what the heck was THAT year all about?!” I’d like to deem a new term for the dictionary: “zoom fatigue.” I really never knew how MUCH time I’d be spending on virtual meetings if it hadn’t been for this virus. COVID had such extreme plans for our normal schedule, didn’t
What COVID Meant & Why We Took a Break Read More »
You might think adding a dog to our already full plates would be a bad idea, but Dan and I were “dog people” before we had kids. We had a Yorkshire Terrier (Webster) and a Maltese (Higgins) that were the best of friends. They both passed away shortly after Hudsyn was born due to old
Adopting a Greyhound as a Special Needs Family: Why We Chose a Retired Racer Read More »
Our 2019 trip to Disney taught us a lot – we can have fun as a family thousands of miles from home, AND Hudsyn met her Disney princesses!
8 Travel Tips When Taking Your Make-a-Wish Trip to Disney World Read More »
Our neverending battle with seizures, the Ketogenic Diet and (even though it worked), why we chose to wean Hudsyn from it this year.
We Reduced Her Seizures by 40% Using the Ketogenic Diet Read More »
